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colet said:Feeding tube advice
We have some advice on Feeding Tubes, in case you hadn't seen itScope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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@Grinchy
Apart from Rheumatoid and Osteoarthritis I also have PTSD. I have posted about the cause of this under the Workplace Bullying thread.
You said you are hoping to learn about how others cope with PTSD.
I had started Cognitive Behavioural Therapy which was actually helping me however, the therapy was interrupted by Covid 19.I am not trying to give you advice but I really do understand what PTSD is like especially when I didn’t have PTSD before.I have had RA and OA for several years as I mentioned in my previous post and I know how to manage those conditions. However, with PTSD it is a lot harder to deal with.
I try to distract myself by doing things I enjoy which include gardening, photography, spending time with and feeding wildlife and spending time outside. I have found doing these things has helped me a lot.I have posted lots of photos on the Wildlife and Photography threads if you’re interested.The CBT therapist said I needed to focus on things which I enjoy to distract my brain.Mindfulness can also help and there are several members of the online community who know more about this than I do.Other members of the online community suggested EMDR treatment which a counsellor mentioned to me but I didn’t manage to look into due to Covid 19.I only recently joined the online community and this has also helped me as I have got involved in several different threads about things that interest me.I hope this helps and you are not alone? -
Hi @Chloe_Scope I think all of topics are good, but I particularly like that we hear the stories of other people in the forum and articles about a particular subject matter. Thank u to all for making me feel welcome and look forward to getting to know u more.
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Thanks for the feedback @Georgiacdon, glad to have you as part of the community It's great to hear you're enjoying being here.
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It would be interesting to see something practical. I like factual information . Although it's understandable people complain, it makes sense to unite to change systems, not keep demanding money. For example, one of the things long needed is official attention to the fact disabled people need regular rehabilitation exercise.
There is a mistaken unconsidered assumption that the n.h.s. must have physiotherapists to 'deal with patients', but that after that, the entire population can, and should "go for a brisk daily walk ".
Rehabilitation centres, lavishly equipped and staffed, are (rightly, of course) available for injured soldiers. But where is the logic? Either the whole injured or disabled population need exactly the same, to transform their lives, or the soldiers don't actually need any such provision.
Human bodies are human bodies, so logically, if ex soldiers or any other people are in constant pain, have various limbs missing, and so on..... they have no needs, require no hydrotherapy, no intensive then maintenance daily supervised exercise guided by disability specialists,. Let them have a couple of sessions from an n.h.s. physio, then go for that " brisk daily walk " (!)
The irony is, that in terms of results per hour of attention, the most disabled, weakest people show the most dramatic results. An hour a day for a month,, then maintenance sessions, with a disability specialist and any necessary specialist equipment can change the life of someone with greatly limited movement, like the late Professor Steven Hawkins . If it brings up the controlled strength and movement in just one finger, it can make someone capable of a degree of independence and communication, using technology to speak and to move about in an electric wheelchair.
By contrast, months and years of concentrated coaching and attention to an elite athlete may make absolutely no difference to their race time -
Here in Medway the Leader of the Opposition Labour and Cooperative Group on the Council presents a weekly video update on all that is going on in the area since covid. He lists many groups with their contact details such as Citizen's Advice, Mutual Aid Road Reps, Food Bank, Street Angels, One Big Family, White Ribbon Campaign, Adult Abuse services, Bereavement help and much more. Some of these groups are Medway specific whilst others are nation wide initiatives.
Would these links be helpful? -
Hi everyone I am new here. I like trains. I am hearing impaired
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Hello hope your ok. I'm new on hete and just leaning my way around ?
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