PLEASE READ: What would like us to chat about on the community? - Page 2 — Scope | Disability forum
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PLEASE READ: What would like us to chat about on the community?

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  • Richard_Scope
    Richard_Scope Posts: 3,638 Scope online community team
    colet said:
    Feeding tube advice 
    Hi @colet
    We have some advice on Feeding Tubes, in case you hadn't seen it :)
    Scope
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  • RAwarrior
    RAwarrior Community member Posts: 430 Pioneering
    @Grinchy

    Apart from Rheumatoid and Osteoarthritis I also have PTSD. I have posted about the cause of this under the Workplace Bullying thread.

    You said you are hoping to learn about  how others cope with PTSD.

    I had started Cognitive Behavioural Therapy which was actually helping me however, the therapy was interrupted by Covid 19. 

    I am not trying to give you advice but I really do understand what PTSD is like especially when I didn’t have PTSD before. 

    I have had RA and OA for several years as I mentioned in my previous post and I know how to manage those conditions. However, with PTSD it is a lot harder to deal with.

    I try to distract myself by doing things I enjoy which include gardening, photography, spending time with and feeding wildlife and spending time outside. I have found doing these things has helped me a lot. 

    I have posted lots of photos on the Wildlife and Photography threads if you’re interested. 

    The CBT therapist said I needed to focus on things which I enjoy to distract my brain. 

    Mindfulness can also help and there are several members of the online community who know more about this than I do. 

    Other members of the online community suggested EMDR treatment which a counsellor mentioned to me but I didn’t manage to look into due to Covid 19. 

    I only recently joined the online community and this has also helped me as I have got involved in several different threads about things that interest me.

    I hope this helps and you are not alone?
  • Georgiacdon
    Georgiacdon Community member Posts: 34 Connected
    Hi @Chloe_Scope I think all of topics are good, but I particularly like that we hear the stories of other people in the forum and articles about a particular subject matter. Thank u to all for making me feel welcome and look forward to getting to know u more.
  • Ross_Alumni
    Ross_Alumni Scope alumni Posts: 7,652 Disability Gamechanger
    Thanks for the feedback @Georgiacdon, glad to have you as part of the community :) It's great to hear you're enjoying being here.

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  • newborn
    newborn Community member Posts: 832 Pioneering
    It would  be interesting to see something practical.  I like factual information . Although it's  understandable people complain,  it makes sense to unite to change  systems,  not keep demanding money.  For example,  one of the things long needed is official attention  to  the fact disabled  people  need regular rehabilitation exercise.   

    There is a mistaken  unconsidered assumption that the  n.h.s. must have  physiotherapists to 'deal with patients', but that after that, the entire population  can, and should "go for a brisk daily walk ".

    Rehabilitation centres, lavishly equipped and staffed, are (rightly, of course) available  for injured soldiers.  But where is the logic? Either the whole injured or disabled  population  need exactly the same,  to transform  their lives, or the soldiers don't actually need any such provision.   

    Human bodies are human bodies, so logically,  if ex soldiers or any other people  are in constant  pain, have various limbs missing,  and so on..... they have no needs, require no hydrotherapy, no intensive then maintenance daily supervised exercise guided by disability specialists,.  Let them have a couple of sessions from an n.h.s. physio, then go for that " brisk daily walk " (!)  

    The irony is, that in terms of results per hour of attention, the most disabled, weakest people show the most dramatic results.   An hour a day for a month,, then maintenance sessions, with a disability specialist and any necessary specialist equipment can change the life of someone with greatly limited movement,  like the late Professor  Steven Hawkins .  If it brings up the controlled strength and movement in just one finger, it can make someone capable of a degree of independence and communication,  using technology to speak and  to move about in an electric  wheelchair. 

    By contrast, months and years  of concentrated coaching and attention to an elite athlete  may make  absolutely no difference to their race time
  • roberttaylor570
    roberttaylor570 Community member Posts: 575 Pioneering
    Here in Medway the Leader of the Opposition Labour and Cooperative Group on the Council presents a weekly video update on all that is going on in the area since covid.  He lists many groups with their contact details such as Citizen's Advice, Mutual Aid Road Reps, Food Bank, Street Angels, One Big Family, White Ribbon Campaign, Adult Abuse services, Bereavement help and much more.  Some of these groups are Medway specific whilst others are nation wide initiatives.

    Would these links be helpful?
  • sufian94
    sufian94 Community member Posts: 25 Connected
    Hi everyone I am new here. I like trains. I am hearing impaired 
  • byeck
    byeck Community member Posts: 3 Listener
    Hello hope your ok. I'm new on hete and just leaning my way around :)
  • Chloe_Scope
    Chloe_Scope Posts: 10,586 Disability Gamechanger
    Hi @sufian94, welcome to the community. :)
    Scope

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