so very fed up of having to justify my disability - invisible disabilities
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Michellesmith0506
Community member Posts: 1 Listener
Hi I'm disabled but so very fed up of having to justify my disability. I have Sma and Fibromaligha /chronic pain and to look at me I look perfectly well. I get so very down and suffer from depression and anxiety. X x x
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Hi @Michellesmith0506 welcome to the community, I have an invisible impairment too and it is hard to be prejudged on the way we look.
I actually wrote a guest post about it before I started working for Scope about there being more then meets the eye.Scope
Senior online community officer -
Hi @Michellesmith0506.
Good evening & welcome to the "online community"
Yes the "Invisable Disability" is far harder to "Justify" than a "Visable" one.
Folling my Stroke in 1998 everyone keep saying how well I always looked !!!!
I did think about having a tattoo with "STROKE" on the back off my "Head" but at the last minute I had a change of mind as I didn't want people "Stroking my Head"
Please please let let us know if we can help you further ??? -
@steve51 that made me laugh! I would have stroked your head if I saw that tattoo!!
Scope
Senior online community officer -
It's always tempting to reply "but you don't look stupid". I've given up trying to justify myself. It's even worse when it's from other disabled people who supposedly know better.
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I also have an invisible disability like yourself, I was diagnosed with Fibromyalgia in October 2015. I can also appear well but actually be in chronic pain and feel exhausted. I hate it when people ask me what I do for a living, my illness has robbed me of my job as an Aircraft Fitter and now my home. I often push through the pain as much as I can, play it down to my partner and maintain an active sex life, though I always suffer the next day. I never make promises anymore as there are often days when I can't 'just keep going '.. By the evening I'm usually exhausted and in chronic pain. Keep your chin up Michelle.
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