Parents and carers
If this is your first visit, check out the community guide. You will have to Join us or Sign in before you can post.

My daughter (14) has a condition called CRPS - complex regional pain syndrome

JoflanJoflan Member Posts: 2 Listener
edited July 2017 in Parents and carers
My daughter (14) is debilitated by a condition called CRPS - complex regional pain syndrome. it is affecting all four limbs and her back. I too am disabled. I have degenerative disc disease which greatly affects my mobility. a condition called NEAD - non epileptic seizures - which may be the onset of MS! I have a husband and two other children aged 11 and 9. Any one out there with a similar story? happy to chat

Replies

  • steve51steve51 Community champion Posts: 7,175 Disability Gamechanger
    Hi @Joflan.

    It's great to have you onboard I do hope that we can help ???

    Yes I have got CRPS "self diagnosed"

    I have got "many many" more problems as well.

    There seems to be very very little known here in Birmingham.

    I think that I have done the "full monty" but still no good ????

    Ealier this year I had an appointment at the CRPS Hospital in Bristol which was a waste of time to be honest.

    Please please let me know if I can help you ???

Sign in or join us to comment.