Joint Hypermoblity Spectrum Disorder
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Andreasuperstar
Community member Posts: 13 Connected
Hi there, I'm in a strange place at the moment. I've just had my diagnosis of fibromyalgia over turned and been re-diagnosed with Joint Hypermoblity Spectrum Disorder according to the newly revised diagnostic criteria. I am very much symptomatic! Just saying Hi for now but very much looking forward to chatting with the rest of the community
Comments
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Hi @Andreasuperstar.
A very very big welcome to you.
Please please let us know if there is anything specific that we can help you with.
We have got a very active online community which would be a good starting point for you.
Please let us know if you encounter any problems.
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Hi @Andreasuperstar welcome to the community - we had a guest post recently about hyper mobility and Ehlers Danlos Syndrome, I know its not the same thing but wondered if it was of interest to you?
Scope
Senior online community officer -
Hi @steve51, thank you so much for a very warm welcome
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Hi @Andreasuperstar.
That's no problem at all.
Please please let me know if I can help you in anyway ?? -
Hi everyone my daughter was diagnosed with hms/EDS and has had flavour since 13 and as a child was under GODH . Since having to turn to pip has been turned down even her MR has left her 2 points on living and 4 on mobility . We have now got to go to tribunal. Why is pip not taking this condition seriously I’m getting so tired of fighting
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