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Matilda Chatterbox

Go to mind.org.uk.  Click on 'information and support', then on 'find your local Mind'.

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Matilda
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Activity

  • dafflover
    Thanks Matilda.  It was because of your posts that I kept going with it.  Your case sounded so similar to my own that it gave me the confidence to carry on.  It was a long old slog but worth it. I feel as though a weight has been lifted and can now get on and enjoy 2018 !!!
    February 15
    • Matilda
      Matilda
      Thank you, dafflover. I know, it's such a relief to win the appeal and be rid of all the PIP nonsense! Really pleased for you. Have a good 2018!
  • Ritzy
    Due to my chronic fatigue that is a part of my fibromyalgia condition I am apprehensive if I am called to go to my tribunal.  I am struggling to cope with all this evidence that they have asked for, I have supplied everything, but got awarded 0 like most people.  I was on DLA before and fought hard to get it, whats wrong with these people who are doing the assessments, have the guide lines changed so much that it is making people like us feel even worse about our disabilities...  I wanted to scream at someone the other day and say is anyone listening to me.  This is genuine.... but held back...
    January 18
    • Matilda
      Matilda
      It's about how you meet the PIP descriptors. Take a look at the list of descriptors on the Disability Rights UK site, PIP section. And people are usually awarded at least some points for using aids, especially if they struggle even using aids.
  • markoldaker1975
    There's a petition for Consultants or GPs to do PIP, DLA and ESA assessments for people with IBD
    To get medical assessments conducted by qualified consultants and GPs who understand patients’ conditions in Crohn’s and Ulcerative Colitis, which can give accurate information about their disabilities to support their claims for PIP, DLA and/or ESA.

    January 15
  • markoldaker1975
    Consultants or GPs to do PIP, DLA and ESA assessments for people with IBD

    To get medical assessments conducted by qualified consultants and GPs who understand patients’ conditions in Crohn’s and Ulcerative Colitis, which can give accurate information about their disabilities to support their claims for PIP, DLA and/or ESA.

    Here’s a bit about myself below:

    I suffer from Ulcerative Colitis, ADHD, OCD, Anxiety and Depression Disorder and Cluster 4 which means I can't deal with day to day life. I'm on a drug called Infliximab Infusion which is for my IBD and have to have it every 6-8 weeks in hospital in the Infusion Unit. This suppresses my immune system, which means I am prone to infections. I have been rejected twice by PIP saying my IBD and Mental Health Issues don't affect me in my day to day life; I am now waiting for a tribunal.

    The Petition Link is below:

    https://petition.parliament.uk/petitions/209048

    Facebook Group was started 2 days ago with now over 700 members. Please join.


    Thanks Mark

    Read more at https://community.scope.org.uk/discussion/39119/consultants-or-gps-to-do-pip-dla-and-esa-assessments-for-people-with-ibd#TKFqV9lcdkj7JXAR.99
    January 15
  • Ritzy
    Thanks I will give it a go.  Thanks for the information.
    January 12