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Have you had a successful PIP appeal? We need your tips

Chris_ScopeChris_Scope Posts: 695Member Chatterbox
We are currently putting together a community tips document intended to help anyone who is planning on appealing there Personal Independent Payment (PIP) decision. If you've successfully appealed, let us know what tips you would give to those now about to go through the process of a mandatory reconsideration.

Please provide your PIP appeal tips by commenting below.


  • johnny100johnny100 Posts: 123Member Talkative
    I would like to know  if you appeal against a decision and it goes against you will you lose your award,or what
  • janice_in_wonderlandjanice_in_wonderland Posts: 206Member Chatterbox
    I am about to attend assessment next week and expecting to go through an appeal but I've heard alsorts...if people can stand and walk up to 20 metres, unable to move their fingers or control bowel/bladder then they may not need to appeal... 

    It appears that areas with the highest percentage of mental illness were possibly left until last to change from DLA to PIP maybe because of the recent changes (March 16th) which were not even discussed with government so they now eliminate anyone who suffers from mental health! 

    A professional welfare advisory service has described this as 'nasty'.

    I'm basing information on people's experiences and a reliable source 

    I'm very interested to learn about other people's experiences as I feel extremely sorry for those who are affected before during and after assessments 
  • johnny100johnny100 Posts: 123Member Talkative
    i would answer to your walking ability that you really struggle and you have to take regular rests,Dont say words like i could walk further with a push,stick to  20 mtrs,If you use walking sticks they will ask if they aid youe walking,the answer is no they dont they are used to give you support.I have whats called pinch grip which makes it difficult to hole things,if you have assistance tell them,if not tell them you really struggle to peal things like potatos ,carrots etc.I had problems my self after having prostate cancer and radio therapy  and being diabetic. .Radio therapy treatment has an impact for many years.I  currently have an ongoing dispute with the DWP.If you have problems with your bowel movements etc tell them that you are not  100% sure that you are clean,hope you understand where Im comimg from with this remark.  . 
  • wildlifewildlife Posts: 1,114Member Chatterbox
    Hello, My experience has been similar to others but I may have handled it differently as I have had many years through bringing up 2 adopted sons with disabilities and looking after an elderly relative with Dementia of dealing with benefits. Now it's my turn. There shouldn't be so many disabled people needing to ask for a mandatory reconsideration or going to a Tribunal the DWP should do the job right in the 1st place. My advice would be get DWP to send you the assessor's report P4A as soon as possible after your assessment.If your assessor has lied on her report or you're not happy with anything that's been written about you complain to ATOS/Capita or whoever did your assessment. They will probably reject it but it all helps to increase the statistics for the number of complaints. You can ring, email or write to them. Do this along side your continuing claim for PIP and tell DWP you've done this. They need to know that you disagree with the report. Send as much medical evidence as you can. It doesn't have to be just from your GP or hospital specialist although that's the strongest evidence. Think about your disability and how you can prove you have it. For the elderly an Occupational Therapy home needs assessment report is accepted, a Physiotherapist for strength tests. You may have to go Private for this but it will be worth it in the end. Also evidence from friends and family. They can write letters on your behalf. If you start to have problems with being turned down let your MP know and again make sure the Decision Makers at DWP know you have done this. Add it to your letters. If it becomes obvious that the Decision Makers are ignoring Medical Evidence and only using the assessor's report tell them. If after your 1st decision you get turned down or are offered less than you're entitled to book a call back with a decision maker and prepare questions you want answered. Again after a mandatory reconsideration you can do this. I have got a 2nd MR by doing this which if successful will avoid me having to Appeal. Any phone calls you make ask who you're speaking to and record the time and date and what was said. If they know you're not going to accept being treated like a liar change will happen sooner rather than later.     
  • WaterLilyWaterLily Posts: 49Member Talkative
    I asked for a Mandatory Reconsideration for PIP. 

    I went through each point that the DWP made. Those that I agreed with, I said so. 
    I didn't rant and rave, didn't call anyone a liar, didn't remind them that I had been on high rate mobility indefinitely and now it had been removed and my motability car will have to go etc etc..

     I just pointed out to them where I thought they were wrong with their decision, how my mobility affected me and how I knew that even though I could put one foot in front of another, I couldn't do it reliably, safely and in a reasonable time period. 

    My tip is, keep calm and state your reasons clearly. 

    I was successful. 


  • bendigedigbendigedig Posts: 254Member Chatterbox
    edited March 2017

    I have had no problems getting the bennefits Im entitled to either.

    I wasnt calm though.  I am outraged by these NAZIS.

    You dont have to be calm to state your case clearly.

    You dont have to moderate your disgust at things that are wrong either!

    Are you suggesting that if you are not calm about what is being done to you then it is likely that you will be unsuccessful in being granted the benefits that you are entitled to?

    Hmm.....  Is this going to become the way of things?  That we are conditioned to be good pets and only then we will be allowed a treat?


    Anyone who can remain calm whilst considering that really ought to go and get an assessment to ascertain what kind of sociopathic or psycopathic disorder is affecting them?  Some people are so NUMB that they seem to be disconnected from the reality of what is happening!

    I would say that if people are upsetting you by infringing your civil liberties and denying you your human rights then it is perfectly okay not to be calm.

    The establishment needs a kick in the rear.  We all need to collectively act and do somthing about it and being calm just isnt going to cut it Im afraid :(

  • wildlifewildlife Posts: 1,114Member Chatterbox
    Bendigedig, I agree entirely. So long as you remain assertive and not abusive attacking the system rather than the people as individuals. Although I cannot help doing that where my assessor is concerned but then again it's important to know when someone has personally caused you a great deal of suffering which needs to be put right, by their unlawful behaviour, and when someone has simply not done their job properly in carrying out the legislation as to how it should be done. I certainly did not remain calm during a phone call from a decision maker yesterday. I was calm to begin with but when she kept quoting things that I knew were wrong I started replying with evidence references disputing everything she came out with to the point where she didn't have an answer and began to sympathise and agree with me. I got what I wanted and would advise anyone to book a call back if you're not happy and don't be afraid to tell them exactly how you feel. She even spoke to my husband who confirmed that what I was telling her was the truth. Don't let them get away with treating us like lesser mortals. You wouldn't treat an animal like the way the way assessor's watch you right from the waiting room as you hobble into the assessment room knowing what a battle you have ahead to convince them you're disabled. Then writing all the personal comments about the way you are dressed, how you feel, and how you behave. I will carry on campaigning to get that part of the assessment form removed. The present system is corrupt and needs changing the sooner the better...!!!            
  • johnny100johnny100 Posts: 123Member Talkative
    I agree with most comments about assessors.They seem to do what they like and get away with it.People should stand up against these people and fight your corner.They expect that the decision thats made is the end of the matter for PIP They try to cut a point off here a point off there to give you lesser point,trying to get it under 12 to pay the min amount.I noticed that on my PIP I mentioned that I require help om most things and they only gave me an average of 2 point ,if you get help its a least 4points so that means that all of the questions on the PIP form require some kind of help in one way or another.I have a current appeal at the first stage where I have written letters outling my finding,of course all the help has been obtained by reading other peoples E mails left on this site.My cut off date for letters etc is the 4th april 17.. 
  • bendigedigbendigedig Posts: 254Member Chatterbox
    @johnny100 @wildlife

    Have you seen what Capita are paying these "so called assessors?"

    Well its in excess of 30 odd thousand!  They are trying to recruit anybody that has a lower level medical background.  Nurses, Paramedics etc.

    How is it sombody who is essentially a box ticker is getting the equivalent of a bloody teaching salary? How the hell do they work that out?

    It must be "quite important" for them to recruit and retain the staff.  I cant imagine any nurse worth thier salt wanting to become a PIP assessor?

    What is motivating these people to lie and falsify information though?

    It looks a bit like blood money to me.
  • johnny100johnny100 Posts: 123Member Talkative
    They go on these courses and are trained to take away what is rightfully yours.I  cannot understand myself why you complete a form  go to an assessor then this goes to another assessor who then skims over the application/PIP form without reading through it properly and get a reply/decision in just 2 weeks,I will tell you how and how its done.They are set objectives/targets,for example 20 PIP forms a day.This is all based on American Sytems.All the final assessors do is fill in the missing words from a template,Its all really like a lot of people say,A POSTCODE LOTTERY
  • janice_in_wonderlandjanice_in_wonderland Posts: 206Member Chatterbox
    Some people think it's like a culling - virtual manslaughter! 
  • bendigedigbendigedig Posts: 254Member Chatterbox

    To quote HRH The Duke of Edinburgh,  we are "useless eaters".  Perhaps he quoted Marie Antionette straight after?  Maybe he then said let them eat cake.....

    Well we all know what happened to Marie Antoinette!

    The way we are viewed by the so called "ruling classes" beggars belief.

    Eventually there will be an awakening.... Hopefuly things will not have gone so far that they will be irretrievable. 
  • johnny100johnny100 Posts: 123Member Talkative
    These so called rule makers on government departments and associates I bet would not have a PIP assessment like the true disabled.it woukd probably be fast tracked with no  questions asked,The norm applies one rule for one and another rule for others.This government state that all people are treated the same,this I dispute.  
  • Chris_ScopeChris_Scope Posts: 695Member Chatterbox
    Thank you very much for that veritable bounty of tips @Markmywords, and to everyone else for their contributions
  • johnny100johnny100 Posts: 123Member Talkative
    I have received mail back from the DWP on my PIP claim and it states that I covered 40 mtrs from the entrance to the booking in desk.I disputed this as I stopped at the door for around 30 seconds  plus  as no one was on the desk,I did not think that cameras were allowed to be used in this manner and the cameras were there for security reasons,is this civil liberties or what. 
  • maur64maur64 Posts: 15Member Listener
    They watch you from the time you get out the car and walk towards the building and enter the building !!!!!!
  • janice_in_wonderlandjanice_in_wonderland Posts: 206Member Chatterbox
    Cameras are everywhere including in lifts my previous support worker said so
    big brother 
    never be surprised at what is happening just dread the worst so if you qualify you must be severely disabled I'm sorry to say 
    if not then appeal appeal appeal 
    good luck is the wrong phrase to use bc DWP letters have always stated 'the law says you are entitled to' £ but not any more 

  • MatildaMatilda Posts: 1,820Member Chatterbox
    I've not had my tribunal hearing yet.  But Disability Rights say that the tribunal are not allowed to formally measure the distance you can walk but they do informally watch you walking into the hearing room and how you sit down and get up.  And DR also say that the hearing is inquisitorial and the tribunal ask challenging questions such as: 'You can walk 50 metres, can't you?'  You should not allow these challenging questions to rattle you.  Just reply: ' No, I can only walk 20 metres before I need to stop and rest'.
  • johnny100johnny100 Posts: 123Member Talkative
    so what is the best way to sit down when attending a tribunal ?
  • MatildaMatilda Posts: 1,820Member Chatterbox
    Slowly, awkwardly and painfully with difficulty bending your knees might help get you points!
  • bendigedigbendigedig Posts: 254Member Chatterbox
    I dont think that it is healthy to make people beg for their entitlements.

    If Im forced into that position I shant be pleasent to the servants of those who have inflicted these circumstances upon us.

    in much the same way I wouldnt want to become a con man or a heroin dealer, I also would not choose to work in the Jobcentre or be a PIP assessor!

    these people have made a choice to do these jobs.  If they dont like what thier bosses expect them to do to people then they should complain like we are.

    it seems to me that some of these people enjoy what yhey are doing in a twisted psychopathic way.  Ive seen the same sort of "shark eye looks in the eyes of riot police at demonstrations.

    the unfortunate fact is, that nasty people who enjoy inflicting pain and misery on people are able to find roles in society, some of them are running the show.  Hell will freeze over before I accept the bullying nature of our present establishment.

    I have suffered from PTSD after being assaulted by a pseudo public official from the private sector.  Please dont tell me that i have to be all "lovey dovey" with my oppressors.  

    I am a grown man, I know what is right from wrong...... Im not the person who needs to be told how to conduct himself.

    I do not have to accept what is happening to us..... This is the mistake the German people made in the 1930s.

    By the way, CAPITA also have the contract for the TV license.  They are the people that send the GOONS around to your house!  So just remember you are being stitched up by CAPITA in more ways than one.  Do a bit of research and see where else their snotty noses and dirty fingers are worming their way into our lives.  

    Then have a think about that when your smiling through your teeth saying yes sir, no sir three bags full sir.  Just as one of their directors gets another honour from the queen.

    It wont be long before a privatised policeman is asking you for "your papers"!

    Dont imagine that any part of the "system" is geared to protecting your rights from these people!  They are the system!  

    Its all about control.  Controling you.  So you dont know whether you are batting or bowling.  The answer lies in not complying with their expectations.  Just as we did with the poll tax.

  • wildlifewildlife Posts: 1,114Member Chatterbox
    Bendigadig, You are so right. We shouldn't put up with having to claim, do a MR and then go to appeal. It's not advice on how to go to appeal that we need it's how to stop this fiasco ever having to go to appeal!!! You're accepting months even a year or more in some cases of stress during which time your medical condition will get worse and who is to blame. Not to mention how much money that would be saved by straight forward claims that got it right in the first place. Markmywords your advice is a classic example of acceptance that you know you will be treated like the lowest of the low but if we keep our  cool and do all that you advise we MIGHT be lucky and win in the end. The other thing to mention is that most people especially those with learning difficulties or mental illness are not able to do what you suggest. While ever I have breath in my body I will think about and fight for them as well as myself.....
  • janice_in_wonderlandjanice_in_wonderland Posts: 206Member Chatterbox
    I know someone who got angry during their assessment and said they were in pain, they didn't need to appeal and entitled to PIP until 2020....goes dog walking several times per day, decorated their home etc etc 

    I thought everywhere was 'zero tolerance' for ASB but it's provoking vulnerable people who could do without the long winded torture 

    I ask the universe to help everyone who needs the money to be granted it 

  • JusticeJustice Posts: 206Member Chatterbox
    I agree Chris, although I do see where you are coming from Bendigedig. I seem to spend my whole life being angry these days, and I used to be quite nice, lol. However it IS better to try to keep your cool when talking to these awful People, put them down in a quiet way, be assertive, and don't let them talk over you.

    I can recall once years ago after Hubby failed his first assessment. I had a total idiot on the phone who was clearly reading from a script!! all in one tone, and no matter what I asked him he kept on reading!!. I just said loudly "STOP RIGHT NOW" That shocked him into silence momentarily, and I told him to go and fine someone who knew what they were talking about. Eventually I got a manager who was actually very pleasant, did listen to me, and did clearly know what he was doing. We won before an appeal BTW.

    Now we will have to see how this latest one went. I expect it to fail, and go through the rigmarole again, seems to be the normal process as far as I can see. what a waste of money, and what a lot needless stress, and anxiety caused to People who are not well in the first place.
  • Chris_ScopeChris_Scope Posts: 695Member Chatterbox
    We have just published our new PIP appeals community tips page. Many thanks to all who contributed!

    You can view our new PIP appeal tips page by clicking here.
  • wildlifewildlife Posts: 1,114Member Chatterbox
    edited March 2017
    Thanks @Chris_Scope I'm just starting to think about whether to appeal although my claim is still with the Decision Makers. If I download the form and start the process do DWP get to know about this and is there any chance it will affect the final decision. In other words do they want people to have to go to Tribunal or are they more likely to make a better award to avoid another statistic on the number of people going to appeal. 
          Also am I right in thinking that going to appeal may be the only way to get any justice regarding the inaccurate assessor reports. Any advice would be good as I can't decide whether to appeal or not.
  • johnny100johnny100 Posts: 123Member Talkative
    If you feel that an injustice has been done stick to your gun.You seem to have a little time on your side and that the time to download a aform and start the process.Go to the experts like age concern or citezens advice etc for them to assist you,you need to get help.While this is going on write ayy your thoughts down,dont worry if they are  a bit mixed up the experts will know what you are trying to acheive.Go through the letter word for word  and what the decision makers has said against each word.Go not try and do it all in one go,time is what you need.
  • johd1snanjohd1snan Posts: 1Member Listener
     found the assessor very fixed. She had a list and refused to talk about anything that wasn't on it. I took along letters from my specialists and she ignored them. When I got my results  I was refused the higher rate of mobility so I went to see a solicitor and was given an hour free. He agreed I had grounds for a cpmplaint and he would write a letter. Before I had the letter to send I received  a letter from PIP.
    They wanted to know why I hadn't sent any info from my specialists. I told them she refused to take it. I sebt the solicitors letter and all other mail. Not surprisingly I got the fill amount, It pays to argue with them.

  • gralogralo Posts: 2Member Listener
    I had my assessment last September and was awarded standard daily living and 4 points ( can stand and move more than 50 but less than 200m) mobility. I was furious as I'm unable to walk more than 15m in one go and even then I use crutches and the 4 points they awarded are worthless. The most annoying thing was that I had a home assessment and my wife opened the door to the assessor while I was laying on the sofa. I did not move from the sofa for the whole duration of the assessment!! The assessor showed me some 'standing-up' activities and commented, "I can see these would be difficult for you to complete so I won't ask you to do so". I was gobsmacked to learn that she then deduced I could walk up to 200m. On the daily living side, my wife does almost everything for me but she was only mentioned once in the assessors report and that was to acknowledge she was present at the assessment.
    The justification for marking me down on the majority of daily living descriptors was that I can drive an automatic car and use a mobile phone! I have no idea what relevance those activities have relating to getting in snd out of a shower, preparing and cooking a simple meal blah blah blah.
    Needless to say, I submitted a Mandatory Reconsideration and sent in a nine page document correcting the errors made by the assessor on the assessment form. A couple of months later I received a revised decision which left the daily living at 8 points but gave me 10 points (standard mobilty) for moving around. So now I had standard on both daily living and mobility.
    I believe that I should have been awarded enhanced on both so started the appeal process. My tribunal was held last week and I was awarded enhanced on both components. I havent heard from the DWP since my tribunal so am not sure if they intend to appeal against the tribunal decision on a point of law. Time will tell.

    Now to the topic and my tips for a successful appeal:

    1. Be yourself - don't make a special effort to dress up. Attend the tribunal in normal day to day attire.

    2. I am prescribed Fentanyl and Oxycontin for pain, however, they do make me drowsy but it is important not to skip any meds for that day. If you are drowsy at the hearing then don't worry as this gives the panel a chance to see how you normally are.

    3. Keep your answers to their questions short and sweet. If you elaborate you have more chances to say something you shouldn't.

    4. Don't be led by misleading statement from the panel. Somebody touched on this earlier - if they say, " you can do this, can't you", make sure you correct them.

    5. I would highly recommend attending and not opting for a 'paper' tribunal where you send in your submissions and a decision is made in your absence. This is your one chance to make your case and statistics show that attended appeals are more successful than paper ones

    6. Last but not least, try and have somebody with you. Your partner is the ideal choice as they can explain how your disabilities affect you. If not your partner, then somebody else who can provide moral support.

    As has been mentioned several times above, don't let them get away with this injustice of denying you your entitlement. If you have been wronged then take it all the way as there is a good chance you will win.

    Good luck!
  • MatildaMatilda Posts: 1,820Member Chatterbox

    It was three weeks after my successful appeal before I heard from DWP with award letter.  Arrears paid next day and new payment rates began about ten days later.
  • gralogralo Posts: 2Member Listener
    Matilda said:

    It was three weeks after my successful appeal before I heard from DWP with award letter.  Arrears paid next day and new payment rates began about ten days later.
    Thanks for the info Matilda. I know the DWP have 28 days to request a Statement of Reasons (SoR) if they intend to appeal the tribunal decision and I've read that they apply for the SoR as a delaying tactic because of being short staffed. I'm curious to see how long it takes them to make contact and can compare it with your times. Thanks again.
  • CockneyRebelCockneyRebel Posts: 3,011Member, Community champion Brian Blessed
    Typically the DWP take between 5-8 weeks to put a claim into payment following a tribunal decision. It is advised that you ring the DWP to make sure they have received their copy of the decision notice as they do have a habit of mislaying them. Of Late The DWP do seem to be requesting a SOR in many more cases but seldom find an error of law with which to challenge on.
    Be all you can be, make  every day count. Namaste
  • sheree909sheree909 Posts: 1Member Listener
    edited November 2017
    Hi all
    I have received pip from my birthday in March 2015 to 2018
    I received the higher rate care amount.

    I had previously been existing on £50 a week esa as took money off for things I had to be paid.

    I know this sound so like a cop out saying I have mental health issues as I know people who claim for it but yet can sit in the pub all day and walk to bingo frequently. they went to assessment with a walking stick and put on an act I suppose.

    I had my assessment the end of July and the day before my daughters birthday the 11th of September they told me had been stopped.

    my daughter is 25 and when she saw the copy of the assessors note she she was furious but professionally sent a five page letter showing category and what should be the right reply.
    I also got a free Doctors’s letter.

    reconsideration told no change but never even mentioned my daughters comments at all.

    I had to go alone as I have just my daughter for family and she had been having days off to help me.
    now I have diagnosed agoraphobia anxiety ocd and extreme depression and have arthritis plus lower back pain and agony in my knees.

    so I don’t bore you all I will just say 
    I went onto meeting room to sit down and was told to sit on the other chair so she could see me.

    as many above have wrote.....
    she wouldn’t deviate any questions for me to elaborate why and how I need the help.

    said I could hold a cup as I had a glass of water. 

    Also as I had my spleen removed as was in wrong place and growing. 
    I now take penicillin forever. 

    It was also stated I had great eye contact and didn’t need to repeat the questions ????
    my ocd is touching and counting things and if she had been paying attention she would have seen I wasn’t mainly staring at an eye chart that was near the door to her and mines right side. 
    I added the letters the comums etc and she didn’t have to get my attention as I do get sidetracked by my ocd sometimes and especially when anxious.
    I also sweat but is my head that sweats and my hair is always wet again quickly but said no sweating or anxiety witnessed.
    the day of this meeting was a day when it was literally pouring it down with rain and I was soaking anyway from that. 
    She was so rude and said why are you taking penicillin ???
    while turning up her nose and saying have you got an infection ???

    I was close to tears and just wanted to leave but she moved on to next question. 

    SHe advised that I was Fit enough to look after myself and I  needed no help so I had my money and support taken away.

    i have overdosed several times and the doctors letter mentioned this was prior to first pip assesment
    i am scared and just hide in bed all day as I don’t know what to do about it now. My daughter had arranged all the bills I owed to agreed amount she I could manage each month but now I can’t pay it. 

    I would love some advice as to what to send to tribunal as I am getting back to square one again 
    Thank you in advance for any help. 
  • CockneyRebelCockneyRebel Posts: 3,011Member, Community champion Brian Blessed
    Have you made a request to the tribunal ?
    This is done on an SSCS1 form. You should make the request within a month of the date on your MR letter. You do not have to send details with this just your basis reasons for your appeal. Once your appeal is accepted you will receive a bundle of papers containing all the evidence so far in your claim, this is what you should use to make your submission

    Be all you can be, make  every day count. Namaste
  • PippaScopePippaScope Posts: 2,079Administrator Scope community team
    Hi @sheree909, I'm sorry to hear about your assessment experience and the distress this has caused you. As @CockneyRebel says, it would be good to know whether you've made a request to the tribunal?

    It's really good to hear that your daughter has been supporting you. If you are still having thoughts of suicide at the moment, it is important that you discuss them with someone who is qualified to help, such as The Samaritans. You can call them on 116 123 (free) or email them at jo@samaritans.org at any time.

    You might also benefit from reading MIND’s information on how you can help yourself:


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