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Support for Auditory processing Disorder (APD)

All of our family have a clinically Auditory processing Disorder (APD).. The problem has been that we have never been able to find anyone who is capable of providing any support and or understanding regarding our complex disability.
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Good Evening & Welcome 🙏🙏
I am one of the Community Champion’s here at Scope.
I have got some info for you below which I do hope it will be helpful????
https://www.nhs.uk/conditions/auditory-processing-disorder/
@steve51
Our community champion @Ami2301 had been told there was a possibility she had APD, how are you getting on Ami?
@dolfrog thanks so much for sharing, I hope you can connect with our members.
Senior online community officer
All of my family, 3 sons, my wife and I, have a clinical diagnosis of having various types of Auditory Processing Disorders. We are all clincially diagnosed at various assessment centres (Sheffield University, Great Orrnond Street Hospital (GOSH), and University College London (UCL) ) between 2003 and 2012. Auditory Processing Disorders are a listening disability, or the brain not being able to effectively process the sounds the ears hear, which includes sound based communication such as speech.
The temporal form of Auditory Processing Disorder is concerned woth having problems processing the gaps between sounds, which can include the gaps between words in rapid speech. The temporal form of Auditory Processing Disorder is also the main underlying cognitive cause of the developmental dyslexia symptom, what the dyslexia industry call a phonological processing deficit.
The Medical Research Council recommends a multi discipline support team for those of us who have auditory processing disorders consisting of an audiologist, a speech and language pathologist, and a psychologist, help those of us who live with auditory processing disorders work around our sound processing limitations and suggest and may be help develop the alternative compensating skill and abilities we may be able to access to work around our limitations.
Unfortunately so far we have not been able to locate any local NHS medical professionals or support staff trained and qualified or willing to learn about our disability So far.we have only come across professional ignorance and incompetence from our local NHS Trusts so called support services, and this just make our mental health worse. for me personally it causes high levels of blood pressure.
Do you know where we can get the support and understanding we need so that we can begin to not feel so depressed, and have UK mental health teams increasing the public awareness of auditory processing disorders, so that we don not feel so much like freaks by others in our community. In recent years I have become house about mainly just ot avoid the disability discrimination from others who have never heard of Auditory Processing Disorders, and do not understand how best to communicate with me.
Thank you for sharing this with us. I am sorry to hear what you have been through. I'll tag in @NicolaLatheySLT our speech and language advisor ; who may have some suggestions.
I know you've not been satisfied with your treatment on the NHS, but what sort of treatment are you receiving for your mental health as a result of APD at the moment? (Sorry if you've mentioned this somewhere else!)
Scope
due to the ignorance and professional negligence of our local NHS trusts audiologists, speech and language, and especially psychologists I have been totally ignored, and i have had no support what so ever for my mental health issues. I have found that running a support group on Facebook (currently it has just over 12,500 members) has been of some help as I can share my issues with others who have my listening disability.
the problem it seems tis that I know more about my disability, than those who should be trained and qualified to provide the suport and understanding those of us who have auditory processing disorder require.
And it would like to poinyt out that one of your advisors had a good description of my disability posted on their page, but deleted it as soon as I mentioned that it was a good description of my disability. Just trying to hide their ignorance,
The post that was deleted was not a duplicate, it was a description of issues provided by the speech sand language advisor. From my perspective it was deleted by the initial author to get rid of my comment, describing the list symptoms and issues being a good description of Auditory Processing Disorder. basically just to hide their professional ignorance, and that of the members of the organisation they run.
I started an adult APd group called "OldAPDs" on Yahoo back in 2000, which over the years has included an online research program which an Australian psychologist who works with with adults who have APD a the research had contributions from an international group of adults who have APD. the result articles "Controlling the Chaos" and "The Trouble With Strangers" can be downloaded from Damien Howard's web site Ear Troubles
I also run a Facebook Auditory Processing Disorder (APD) support group, which has an international membership of over 12,500 mermbers mainly parents of children who have APD. The problem is a lack of adults who have APD willing ot explain the issues of living with APD, which is the main underlying cognitive cause of the dyslexia symptom.