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Concerns haven't been addressed

JancieJancie Posts: 5Member Listener
edited January 14 in Disabled people
Hi everyone, not really sure what I'm hoping for posting this but here goes. 5 years ago I had a ruptured brain aneurysm which was coiled, they found 5 other aneurysms which have been left alone for now, a couple of months later I developed hydrocephalus and had a shunt fitted(with magnets) on the whole I have made a good recovery. I go every 2 years for an MRI scan to check that the other aneurysms haven't grown and I always have to phone beforehand to let them know that someone needs to be available to reset my shunt after the scan, when I phoned before my last scan in May 2018 the lady I spoke to said I was booked in to go in their new scanner but due to the type of shunt I had I could never go in that 1 as it was too powerful and could damage my shunt, she said she would make sure the MRI department knew about this. I had my scan and went to have my shunt reset which is a quick procedure and only takes about 10 seconds, I have never had a problem with the shunt being reset. 7 hours later I was still there because despite several people trying no-one could reset my shunt, the machine was deemed as faulty and I was asked to go back the following week(120 mile round trip) as they said they would have another machine by then I did this and again no joy, I told them what I had been told about not being able to go in the new scanner and asked for someone to confirm I hadn't been put in it and I have requested that information numerous times in the last 20 months without ever getting a reply. It now turns out that I need to have a new shunt put in on the other side of my head and because the faulty 1 is overdraining I have masses of tangled blood vessels on my spinal cord which is highly dangerous and will require surgery and radiation. I am furious that this has happened and even more annoyed that my concerns haven't been addressed. 


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