My daughter has CP and forgets to go to the toilet. Anyone else in the same situation?
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bizzymam
Community member Posts: 5 Listener
my 7 old daughter has mild cerebral palsy and she keeps soiling herself or forgets to go to the toilet and leaves it to last second, anyone else in the same situation? thank you
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Hi @bizzymam,
Welcome to Scope's online community! It's great to have you here.
I've moved this post into our dedicated Cerebral palsy category, where other members of our community will be able to share their experiences and offer advice and support.
If you have any other questions and if we can help in any way, then please do get in touch!Liam -
Hi @bizzymam Welcome to the community!Disability Gamechanger - 2019
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Hi everyone, how’s everyone here xx
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Hi @bizzymam
Welcome to the community!
With regards to your daughters toileting, I've spoken to a number of parents of cp kids that have similar issues. Often due to the nerve messages related to toileting being sluggish or disrupted, sometimes complicated further by constipation issues.
Often things improve with time and the child maturing enough that the take more responsibility for taking themself off to the loo regularly, even if they don't have a sensation of needing to go. Some times prompts from adults or even an alarm on a watch can be helpful. Sometimes a change in diet to more regular (and therefore more predictable) bowel movements, can be helpful.
If you haven't already done so it might be worth having a word with the GP to see if a referral to a specialist is necessary.
Also the charity ERIC can advise on the management of childhood incontinence: https://www.eric.org.uk/
Best Wishes
JeanJean Merrilees BSc MRCOT
You can read more of my posts at: https://community.scope.org.uk/categories/ask-an-occupational-therapist
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That’s a big help thank you jean xx
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My daughter is 10 and she still has problems with day time wetting, which unfortunately used to happen at school. She has had bladder scans and there is nothing anatomically wrong with her. She has had movicol prescribed in the past for constipation. But now it's just managing her by reminding her with alarms etc.
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Welcome to the community, @ladymystikal!
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Hi @bizzymam and @ladymystikal
Good to meet you both. I have had experience of myself when I was a lot younger. There was nothing physically wrong with my bladder and I underwent 'training' with the help of a physiotherapist.
I agree that the first port of call should be your G.P. to rule things out. Please try not to worry. This is an issue that can be overcome
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Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Thank you Richard,her school going to put me in touch with the school nurse and have a chat xx
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We have to tell lily do you need the toilet and I sometimes I know the signs when she needs to go but she wets her self by time she gets to the toilet xx
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I used to leave too late as well @bizzymam
It is something that can be taught. It takes a little time.Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know.
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