new to all of this! Son diagnosed with CP at 6 - I have no idea what im doing
Options
AlexAndrews24
Community member Posts: 1 Listener
hi, my name is Alex. I have a son called Riley who is 6 years old. he got diagnosed with Cerebral Palsy this year. we have had a couple of different therapy sessions, he has now got a leg splint (which I don't think is helping)…...I have no idea what im doing or what I need to do. I need someone to show me which way is up. can someone offer me some guidance on the process please? thank you xx
Comments
-
Hello @AlexAndrews24 Pleased to meet you welcome.
Thank you for joining and also sharing.
I am sure one of our team can advise @Richard_Scope he has a lot of knowledge on CP and would be able to help you with any questions you may have.
Also take a look at our posts from community members under Cerebral Palsy . May be of interest to you and give you reassurance and support.
We are a supportive, friendly community. Care and share.
Please ask if we can advise on anything some one will know.
Please take care.
@thespiceman
Community Champion
SCOPE Volunteer Award Engaging Communities 2019
Mental Health advice, guidance and information to all members
Nutrition, Diet, Wellbeing, Addiction.
Recipes -
Hi @AlexAndrews24 welcome to the community!
@thespiceman has given you some great links to check out!
Do let us know if we can be of any further assistance!Disability Gamechanger - 2019 -
Hi @AlexAndrews24
Good Day it’s great to meet you!!!!!!!
I’m very very sorry to hear about your current problems with your leg split.
Sorry but did you get the leg splint via the “NHS” ??????
Can you please let me have some details on the “leg splint” ????
I will try to help you out with things then!!!!!!!
Thanks.
-
Good to meet you and welcome!Receiving a diagnosis can be a really confusing and emotional time, even after a year. What you are feeling and experiencing is completely normal and understandable. Are there any specific areas that you think I could help you with?
Scope
Specialist Information Officer and Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our chatbot and let us know. -
Hi @AlexAndrews24
We have some videos around getting a new diagnosis for your child that might help?
https://www.youtube.com/watch?v=bSpkYnOMe8k&feature=youtu.be
https://www.youtube.com/watch?v=glACggVD_kM&feature=youtu.be
https://www.youtube.com/watch?v=DXix-yi1uAU&feature=youtu.be
https://www.youtube.com/watch?v=6T6-346O0hw&feature=youtu.be
Scope
Senior online community officer
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.6K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions