Nerve damage (diabetic)
Options
Cj0709
Community member Posts: 1 Listener
Hi all i have had severe nerve damage in both legs since 31st March this year. I was off work for 3 months and had a very low mood which for me is unusual. Initially i had been prescribed a range of drugs to ease the pain. It was first thought it was diabetic neuropathy which my diabetic team don't think it is. As the pain has not presented itself in the usual way. They said the nerve pain usually starts from the feet and works up the legs. I have had no pain in my feet atall. I have had numerous tests, tons of blood taken, MRIs, electrical impulse tests, camera down my throat. Yet still no diagnosis, unfortunately the NHS is in a mess as we know but until now i hadnt realised how bad. But when your told there is a 25 week waiting list for an appointment to see a neurologist and a letter through the post for pain management for mid September just gone, baring in mind this is from March this year. Anyway the pain at its worst gave me suicidal thoughts i swear it was horendous. I am on 150mg Pregabalin a day and 400mg Tramadol for the nerve pain. Since June 24th ive been on this regime and if this combination had not worked for the pain god knows where i would be. It was like a miracle within 2 hours of taking the Tramadol the nerve pain about dissapeared by around 70% it was amazing. That is where i am today with no more forward on diagnosis just being managed by the tablets. My GP did not want me on Tramadol for this long but it has been a life saver literally and i promise you i am not making this up. Does anyone have any ideas what would cause this nerve damage to start? It came on like i said 31st March with no warnings and no medical proffessio als can give me a diagnosis. Help required or information and guidance if you have some. Regards Chris.
Sorry for waffling on.
Sorry for waffling on.
Comments
-
Hi @Cj0709. You're very welcome here.
It sounds like you've hit a bit of a wall in terms of making much progress with a diagnosis. Unfortunately none of us here are medical professionals, so wouldn't be able to advise with any degree of accuracy. Do you have any other appointments lined up?Community Manager
Scope -
Hi @Cj0709 and welcome to the community! I hope you get some answers soon!Disability Gamechanger - 2019
-
Hi Cj I have diabetic neuropathy in one leg and it also started at the top of the leg not my feet, the pregabalin doesn't seem to have been much use either, I also have neuropathy in my other leg which is neurological and both seem to be getting worse, trying to walk round Tesco today I almost collapsed.
Take care2024 The year of the general election...the time for change is coming 💡 -
Hi @Cj0709, just wanted to join others in welcoming you to the community. How are you doing today?
Scope
Brightness
Categories
- All Categories
- 13K Start here and say hello!
- 6.6K Coffee lounge
- 69 Games lounge
- 385 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 586 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 737 Transport and travel
- 31.7K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 869 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 818 Rare, invisible, and undiagnosed conditions