"normal" MRI
Options
NRI
Community member Posts: 6 Listener
My daughter is 6 months and we have just had the results of her MRI through- the neurologist says it appears normal.
She suffered a grade 2 HIE at birth and is displaying all the signs and symptoms of CP.
Severely hypotonic, drooling, tongue thrusts, doesn't roll, only just started to reach for toys, doesn't bear any weight on her legs, constipation AND just recently from what I can gather MYOCLONIC jerks keeping her awake at night. (I've been taping these)
Can you still have a CP diagnosis with a clear/normal MRI???
HELP!!!!
She suffered a grade 2 HIE at birth and is displaying all the signs and symptoms of CP.
Severely hypotonic, drooling, tongue thrusts, doesn't roll, only just started to reach for toys, doesn't bear any weight on her legs, constipation AND just recently from what I can gather MYOCLONIC jerks keeping her awake at night. (I've been taping these)
Can you still have a CP diagnosis with a clear/normal MRI???
HELP!!!!
Comments
-
I have read that an MRI can be 'normal' but that very subtle unseen changes can occur causing symptoms of CP. At the end of the day you treat the child not the machine!
-
Hello
Yes I think it is possible to show no signs of brain damage on an MRI yet still present with symptoms of cerebral palsy and then it is also possible to show a lot of damage to the brain which can in turn show no affect to the individual.
The MRI is only a picture of the brain it doesn't tell you what it's doing and it is a complicated place. With my boy he has global brain damage and this showed quite obviously on his MRI. But I wasn't bothered about that I just took what I saw in front of me as the condition he has and accepted it and worked with it. The MRI was neither here nor there to me. My boy has HIE grade three.
Your daughter is still young so as she develops so may her development and movement try and keep positive and just help her along the way.
Linzi -
Hello,
http://www.scope.org.uk/forums/early-years/can-you-help-my-frustration
Yes, priority is your baby 100% but your next priority would be to write to the Hospital and ask for a copy of the SUI (Serious Untoward Incident) report and then consider (if its right for you/not everyone) contacting a medical negligence solicitor.
Regards
Brightness
Categories
- All Categories
- 13.1K Start here and say hello!
- 6.7K Coffee lounge
- 70 Games lounge
- 386 Cost of living
- 4.3K Disability rights and campaigning
- 1.9K Research and opportunities
- 199 Community updates
- 9.2K Talk about your situation
- 2.1K Children, parents, and families
- 1.6K Work and employment
- 768 Education
- 1.7K Housing and independent living
- 1.4K Aids, adaptations, and equipment
- 588 Dating, sex, and relationships
- 363 Exercise and accessible facilities
- 738 Transport and travel
- 31.7K Talk about money
- 4.4K Benefits and financial support
- 5.2K Employment and Support Allowance (ESA)
- 17.1K PIP, DLA, and AA
- 4.9K Universal Credit (UC)
- 6.2K Talk about your impairment
- 1.8K Cerebral palsy
- 870 Chronic pain and pain management
- 180 Physical and neurological impairments
- 1.1K Autism and neurodiversity
- 1.2K Mental health and wellbeing
- 317 Sensory impairments
- 819 Rare, invisible, and undiagnosed conditions