• Read over some of our recent discussions and have your say!
• Upload a new profile picture and give your profile a personal touch.
• Get the latest information on issues relating to coronavirus.
Does anyone have experience of correcting scoliosis?
I am the parent of a disabled daughter who has cerebral palsy. She is in her
thirties. She has marked spasticity throughout her whole body and she has a
severe scoliosis [spinal curvature]. She uses a powered wheelchair for
mobility. She suffers a great deal with back pain and the only way we can now
help her over and above the pain relief medication she takes is by lying her
down on her bed every day for a few hours every afternoon.
We went to see the orthopaedic surgeon a couple of weeks ago to talk about the possibility of correcting her spinal curvature which might reduce some of the pain she feels or to see whether he could fit a brace to support her. He has told us that because her curvature goes over a certain degree he does not want to fit a brace [says this would not help in any way]and also he does not think she would come through the operation because of her cerebral palsy and because the operation is such a big one. She does suffer from a lot of recurring infections.
The surgeon said he has carried out this operation on one other adult who has cp and that this went ok but he does not think the same for our daughter.
Does anyone out there have any similar experience or does anyone have any information on operations to correct spinal curvatures. As her parents we are both very upset to think she may have to go on suffering with the pain which is getting worse and worse as the years are going by. This is such a big decision for us. Our daughter also does not know which way to go with this as she is capable of making decisions for herself.
Would welcome any comments."Thanks in advance for any experience you can share with me to pass on to my friend.