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Dystonia- anyone else?

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strongsurvivor82
strongsurvivor82 Community member Posts: 3 Listener
in Cerebral palsy
Hi I suffer with generalised dystonia due to a reaction to psych meds years ago. My case is fairly mild so I feel very blessed but it still affects my life in ways one might not think of. The muscle spasms and risk of falling due to balance issues are quite debilitating. I find it hard to cope with peoples` reactions. So little is known about it?
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  • BexK
    BexK Community member Posts: 3 Connected
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    :) Hello. I have athetoid CP, which is similar to dystonia.  I have multiple difficulties including speech difficulties but I also have difficulty with walking and balance.  ditto people's reactions as well! I never know what to expect when I meet new people.  happy to chat if you want. :-)
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