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Pyschosomatics

lozzer25lozzer25 Member Posts: 89 Courageous
edited November 2018 in Cerebral Palsy
Can anybody tell me what this is absolutely floored today by neurologist have to have another mri scan to determine what part of my brain has been damaged so may not have cerebral palsy after all confused is an understatement to how I'm feeling I feel as if I'm a hypochondriac don't get this it at all :(
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Replies

  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Wow, that does sound like a very confusing situation. Did your neurologist actually say that your impairment is psychosomatic? You should not feel like a hypochondriac. I'm here for a chat.

    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Trying to infer that I have to go for another brain scan my life thrown into question again can't get my head round it :( 
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Same day I thought I was getting botox too which didn't happen
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Don't understand it all I know is that I have had this symptoms since being very young must of been faking them since then I should be on corrie I'm that good 
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  • GeoarkGeoark Community champion Posts: 1,248 Disability Gamechanger
    @lozzer25 sorry a little confused with your response to Richard, ie did the neurologist mention it was psychosomatic or is this your interpretation?

    Either way you have misunderstood what psychosomatic means. There is a strong link between mental health and physical health. Depression, anxiety, stress and phobias are just some of the things which can either cause or exacerbate physical symptoms. This does not mean that those physical symptoms are not real, made up or 'all in your head'.

    I don't know enough about it to make an educated suggestion, but as CP is caused by brain damage is it possible that they are just getting an updated information on this damage? (sorry if that is a real stupid question)

    I hope this gets sorted out for you soon.

    As an individual I stood alone.
    As a member of a group I did things.
    As part of a community I helped to create change!

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  • lozzer25lozzer25 Member Posts: 89 Courageous
    I don't know Im just very angry and upset at the moment with it all I fought for a diagnosis to begin with just feels like I'm being dragged from pillar to post again my old practitioners in wigan just swept me under the carpet I was told the signs and symptoms were there but the medical term was never used that was when I was put on baclofen the first time I heard about was when a doctor put it on a hearing test referral just my whole life has been put into question I was just beginning to learn to tolerate it and then something else gets thrown into the mix I was thought I was getting botox that day didn't get botox as she wouldn't do it just got sent home with a load of confusion 
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    I can completely understand where your anger and frustration is coming from. I think it would be good to have the MRI scan and then when the results are back your neurologist may have a better idea of how to progress. I understand that the feeling of being passed from pillar to post is really annoying. When were you first diagnosed?

    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    When I was 25 
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Perhaps the neurologist is requesting the MRI scan to confirm that you received the correct diagnosis when you were 25. I know it is easier said than done but try not to worry. I am more than happy to talk things through with you.
    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    I don't know I honestly think the doctors was sick of seeing me thank you that's nice to know I just can't comprehend it the treatment I received in wigan was appalling 
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Is Wigan where you were first diagnosed with CP?
    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Yes
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    I would think the MRI scan would be to confirm the original diagnosis that you received at Wigan. What was wrong with they way Wigan treated you?


    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Richard_Scope said:
    I would think the MRI scan would be to confirm the original diagnosis that you received at Wigan. What was wrong with they way Wigan treated you?


    They swept me under the carpet told me the signs and symptoms were they but the medical term was never used doctor I had be going to for 11 years then give me a piece of paper to basically say there you go get on with it other stuff as well let's just say they didn't give a damn and just covered their backs for a very very long time its to long of a story to write on here 
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Sometimes the medical treatment and advice we receive are not as good as could or should be. I have experience of that too. How are you now? Have there been any updates at all? I'm really happy to talk things through with you:smile:

    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Richard_Scope said:
    Sometimes the medical treatment and advice we receive are not as good as could or should be. I have experience of that too. How are you now? Have there been any updates at all? I'm really happy to talk things through with you:smile:

    Thank you I was sent a letter a few weeks ago to see another neuro doctor I haven't received word of mri yet and I haven't received letter of consultation I initially sought legal advice as I believed it to be negligence but I couldn't claim as the limitation period had passed they were all basing on it from when I was 18 but I didn't get diagnosed till I was 25 wigan just swept under the carpet but where I am now have treated me accordingly and listened to me :) 
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    There is a cutoff point for negligence claims so I believe. I also tried several years ago with no success. Is the appointment to the second neurologist for a second opinion?
    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Don't have a clue the neurologist I saw first has reffered me to him/her 
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    Perhaps it is for a second opinion. I hope you hear back soon, waiting can be really tough. 

    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Richard_Scope said:
    Perhaps it is for a second opinion. I hope you hear back soon, waiting can be really tough. 

    Thank you im trying my best not to think about it will let you know the outcome 
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  • Richard_ScopeRichard_Scope Administrator Posts: 1,906 Scope community team
    If you need a chat I'm around :)
    Scope
    Specialist Information Officer - Cerebral Palsy
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Thank you going to try and adopt my partners advice it is what it is no point worrying about that something that's out of your control :)
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  • lozzer25lozzer25 Member Posts: 89 Courageous
    Just been for an eye test as I need some new glasses to be informed that at 32 years I have early signs of cataract what else can happen this month seriously yet again wigan didn't pick it up could of been there since birth very annoyed yet another thing to not worry about
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