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Seeking advice for my 4 year old granddaughter urgently?
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Hi and welcome @gabriel336 Glad you have joined us here.
You may want to look at our section on parents of disabled children, and even our CP section. I will also tag in our community CP advisor @Richard_Scope
Has your daughter spoke to social services about getting some help and about her school and nursery
I hope other members will be able to offer more help it must be so hard for her and you -
Hi @gabriel336
Good to have you here.
Your daughter needs to make contact with here local social services. Her GP should be able to help with this. What area of the UK do they live in?
We have some advice pages for Families with Disabled Children
We will try to support you as much as possible.Scope
Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Hello and thank you for responding!Social services no she hasn’t spoke to them. Does she have to contact them?
As for the nursery she did it herself so both twins could go together for a year as they have just turned 4 and begin reception at 5. They moved from Merseyside to Cumbria last August.
The GP isn’t to good she only been once for an emergency appointment she had tonsillitis was left in waiting room for an hour crying. She really needs to change GPs but with the lockdown and everything...
I’m sorry to sound negative -that’s just the truth of the matter.Thanks again I’m near crying with relief just to speak to you! -
Hi @gabriel336!
I'd also like to welcome you to the community, I'm glad you found us.
She can refer herself to social services by searching for her local council here and finding out what their contact details are.
I'm sorry that her GP isn't very good. Was it the surgery in general that let her down, or was it a specific doctor? She could ask to speak to a different GP at the practice next time.
There's no need to apologise for sounding negative. This sounds like a difficult situation for you all, and everyone on the community is here to try and support you in any way we can.
Try and take a deep breath -
Hi @gabriel336 and welcome to the community
I see you've been given some advice above so there isn't much for me to add here. All I'll say is that if you want to get support for your grandaughter's visual impairment, I would recommend contacting the RNIB's helpline on 0303 123 9999. They will be able to advise on anything and everything sight loss related, from mobility aids to home adaptations and everything in between.
If there's any other advice you need, don't hesitate to ask.Online Community CoordinatorConcerned about another member's safety or wellbeing? Flag your concerns with us.
Did you receive a helpful reply to your discussion? Fill out our feedback form and let us know about it. -
Thank you everyone it mean a lot xx
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Hi @gabriel336 - welcome to the community, which I'm pleased you've joined. As another Mum & Grandma, I know how difficult it is when they need help. I do hope the info given above helps your family. People here understand, & are both helpful & supportive, which I'm sure you've found.Please let us know how you get on, & ask any questions you need.
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Good morning @gabriel336
How are you today? I did some looking around last night and found the Children with Disabilities Team in Cumbria and Contact - for Families with Disabled ChildrenScope
Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Scope
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Hi everyone just a quick update. Aniyah is starting nursery with her mum for a few hours she has her own carer. So hopefully she will get to know her over the next few weeks. Then once she is settled in Sophia will start too!!
My daughter has still to contact the social services and I will let you know the outcome.
I do have a question for anyone who can help me?
Yesterday whilst at the park we needed the disabled toilet-It was locked. We asked for the key from the cafe they told us to ask at the kiosk for mini golf. They told us that the Park Ranger had it. I asked them to contact him. The lad went away for about 5 minutes and on his return said he couldn’t get hold of him. We tried to get the wheelchair into the ladies toilet but it wouldn’t fit. We went to the playground and I mentioned it to one of the parents she was disgusted we couldn’t use it. She suggested that we would have to go to the leisure centre. After at least 40 minutes since we tried to get the key the woman spotted the park ranger and began to shout him by name. We asked for the key and asked him why it was kept locked if he was not going to be there to open it and nobody could contact him?He said it was the only key and he couldn’t give it out as other people took it home. He then said if you were disabled and you wanted to use the toilet we had to apply to the council for our own key. He then went with my daughter and opened it.
Surely in a public park which allows others to use the toilets freely as they are open this is discriminating against people who are disabled? I am so upset that my granddaughter is not allowed to be changed on a rare day out. I would like to ask you all who do I take this up with?
Thank you all xx -
Hi @gabriel336 - About disabled toilets, I've heard about the Radar key scheme. Please see: https://www.disabilityrightsuk.org/shop/official-and-only-genuine-radar-keyYou could try your council to see if you can get a key from them, or at least confirm if you bought a Radar key that it would give access to local disabled toilets.I'm sorry for the recent experience you had & that it took so long to get a key, but hope the above info may help.Thank you for your update, & do please keep in touch.
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You don't have to apply for a key. Radar keys can be purchased from your local authority or you can buy one here
Radar Keys
Disabled toilets are often locked because they get misused or vandalised.Scope
Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
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Loos.....Its better not to have them unlocked, to keep out idiots who would wreck them. Keep your own key. They don't even cost much.
Seives for food......Can you find the current version of a Mouli-baby, which could mush a roast dinner in necessary? Maybe Lakeland?. There are other, similar, mechanical things now, or blenders.
Thank goodness the children have gained the places in nursery. Hope everything goes well for you all -
Thanks all Radar key has been ordered- I had no idea about them. Xx
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If your anything like me @gabriel336, I'd order two. I forever losing radar keys!
Scope
Cerebral Palsy Programme Lead'Concerned about another member's safety or wellbeing? Flag your concerns with us.'
Want to tell us about your experience in the community? Talk to our
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If they are in Cumbria then there is a parent carer forum (or at least there was! it's currently being "revitalised") There are also some more local forums depending on where they live. There is also Cumbria Cerebral Palsy society which has just re-opened. They have 2 support workers, one north Cumbria and one south. In the past we have found them incredibly helpful. (we are in the south of the county)
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Radar key arrived! I should have ordered 2! Oh well.Thank you for so much for the information it’s very helpful xx
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@gabriel336 I'm glad you got one! I have a radar key and it's saved me many a time.
How did Aniyah find the nursery? I hope it went wellOnline Community Co-ordinator
Want to tell us about your experience on the online community? Talk to our chatbot and let us know.Concerned about another member's safety or wellbeing? Flag your concerns with us. -
Yes she has a nursery she has just started for a few hours of a morning with her mum so that the carer can get to know her. Thank you for asking xx
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